Feb 17, 2021 | Life with CMT, Stories
By: Monica Thomas, living with CMT2A When I was a kid and would watch movies in which wishes came true, excitement would build in my belly as I imagined my own wish being granted — what if I could rub a lamp and wish CMT away? Thoughts of life without CMT would race...
Feb 17, 2021 | Life with CMT, Stories
By: Shanae Fernandez, living with CMT1X For as long as I can remember, I’ve been different. As a child, running, playing and keeping up with my friends was a challenge. I felt slow and tripped a lot. In high school, I played sports but never felt good enough at...
Feb 17, 2021 | Life with CMT, Stories
By: Jamel, living with CMT I was 16 years old when I first heard about a disease called Charcot-Marie-Tooth (CMT). Growing up, I played basketball and football and lived a very active lifestyle. A broken foot during a game or ongoing football injuries seemed normal —...
Feb 15, 2021 | CMT Research Updates, CMTRF Funded Research, Drug Development, Gene Therapy, Research news
In January 2019, the CMT Research Foundation began funding a research project led by Dr. Kleopas Kleopa at the Cyprus Institute of Neurology & Genetics to study a gene therapy approach to lower levels of PMP22 protein, which is the protein coded for by the gene...
Feb 12, 2021 | Life with CMT
By: George Simpson, CMT Research Foundation volunteer With no treatments or cures currently available for people with Charcot-Marie-Tooth disease, caring for someone with CMT may feel daunting. As a dad of a daughter with CMT and a friend to many with the disease, I...
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