Losing My Independence is Not Rare to Me

Losing My Independence is Not Rare to Me

By: Monica Thomas, living with CMT2A When I was a kid and would watch movies in which wishes came true, excitement would build in my belly as I imagined my own wish being granted — what if I could rub a lamp and wish CMT away? Thoughts of life without CMT would race...
Living in Pain Every Day is Not Rare to Me

Living in Pain Every Day is Not Rare to Me

By: Shanae Fernandez, living with CMT1X For as long as I can remember, I’ve been different. As a child, running, playing and keeping up with my friends was a challenge. I felt slow and tripped a lot. In high school, I played sports but never felt good enough at...
Caring for Someone with CMT: 3 Tips for CMT Caregivers

Caring for Someone with CMT: 3 Tips for CMT Caregivers

By: George Simpson, CMT Research Foundation volunteer With no treatments or cures currently available for people with Charcot-Marie-Tooth disease, caring for someone with CMT may feel daunting. As a dad of a daughter with CMT and a friend to many with the disease, I...