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Press Releases

One Last Round: Watching Alan Jackson Ride Off Into the Sunset

One Last Round: Watching Alan Jackson Ride Off Into the Sunset

Jun 22, 2026 | CMTRF Foundation News

On June 27, Alan Jackson plays his final concert. After nearly four decades, 35 number one hits, and a catalog that helped define what country music sounds like, he is stepping away from the stage on his own terms.  Several years ago, Alan Jackson opened up about...

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Global CMT Research Convention: Highlights to Expect in 2026

Global CMT Research Convention: Highlights to Expect in 2026

Jun 2, 2026 | CMTRF Foundation News

The Global CMT Research Convention brings together the full spectrum of the Charcot-Marie-Tooth ecosystem in one place: leading scientists, biotech and pharma companies, investors, regulatory agencies and patients, all focused on accelerating treatments for the most...

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Nobody Ran a Single Step at this CMTRF Fundraiser Run

Nobody Ran a Single Step at this CMTRF Fundraiser Run

Jun 1, 2026 | CMTRF Foundation News

Nearly 200 people gathered at Forgotten Star Brewing in Fridley, Minnesota, for one of the most unique fundraising events around: the Zero K Run, benefiting the CMT Research Foundation. The concept was simple. Participants got the full race-day experience, complete...

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CMTRF CEO Welcomed to Prestigious Cohort of Non-profit Research Leaders

CMTRF CEO Welcomed to Prestigious Cohort of Non-profit Research Leaders

Apr 22, 2026 | CMTRF Foundation News

The CMT Research Foundation’s CEO Laura MacNeill will participate in the 2026–2027 cohort of The FasterCures LeadersLink Program, a program from the Milken Institute.   The program aims to help promising nonprofit research leaders worldwide build high-performing...

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WEBINAR: Gene Therapies Demystified, Understanding the Fundamentals for CMT

WEBINAR: Gene Therapies Demystified, Understanding the Fundamentals for CMT

Apr 16, 2026 | CMT Research Updates, CMTRF Foundation News

https://www.youtube.com/watch?v=hrNkyIHed8U One of the most rapidly expanding frontiers in Charcot-Marie-Tooth research is also one of the most challenging to keep pace with. Now, the CMT Research Foundation is making it accessible to everyone. The CMTRF launched Gene...

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Alan Jackson Raffle Offers Exclusive Prizes, Benefits CMT Research Foundation

Alan Jackson Raffle Offers Exclusive Prizes, Benefits CMT Research Foundation

Apr 7, 2026 | CMTRF Foundation News

You can win Alan Jackson’s Corvette or a trip to his sold-out final concert through this raffle, with fundraising proceeds benefitting CMT Research Foundation. Full list of prizes includes: Grand Prize Alan Jackson’s 2013 Chevrolet Corvette Z16 Grand Sport Convertible...

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CMT Takeaways from the MDA Conference

Mar 16, 2026 | CMT Research News, CMTRF Foundation News

The Muscular Dystrophy Association Clinical & Scientific Conference in mid-March is one of the premier gatherings in the neuromuscular disease world, bringing together researchers, clinicians, industry, and advocates to share the latest science. Our research staff...

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William Skach, MD, Joins CMT Research Foundation Board of Directors

William Skach, MD, Joins CMT Research Foundation Board of Directors

Jan 21, 2026 | CMTRF Foundation News

The CMT Research Foundation is pleased to announce that William Skach, MD, retired Executive Vice President and Chief Scientific Officer of the Cystic Fibrosis Foundation (CFF), has joined the Foundation’s Board of Directors. Dr. Skach is a clinically trained...

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CMT Research Foundation to Benefit from a Portion of Ticket Sales from Alan Jackson’s Last Call: One More for the Road – The “Finale”

CMT Research Foundation to Benefit from a Portion of Ticket Sales from Alan Jackson’s Last Call: One More for the Road – The “Finale”

Oct 8, 2025 | CMTRF Foundation News

Alan Jackson is ready to serve up one more round before he retires from touring—and he’s inviting a few friends to join him! Last Call: One More for the Road - The Finale – the last full-length concert of Jackson’s touring career – will take place Saturday, June 27,...

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Dr. Meghan Drummond Joins the CMT Research Foundation as Vice President of Research and Drug Development

Dr. Meghan Drummond Joins the CMT Research Foundation as Vice President of Research and Drug Development

Sep 15, 2025 | CMTRF Foundation News

Dr. Meghan Drummond, PhD, has joined the CMT Research Foundation as vice president of research and drug development. She will lead the Foundation’s research and drug development strategy, overseeing the advancement of promising therapeutic approaches for...

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