Volunteers

Meet the people who help keep the CMT Research Foundation operating smoothly.

Ori Rokach, Ph.D.

Ori Rokach, Ph.D.

Research Associate

​Ori works closely with the CMT Research Foundation’s chief scientific officer to develop scientific content for the website and for the research grants process.

Ori earned his bachelor’s degree in molecular biology and master’s in biotechnology from Bar Ilan University in Israel and a Ph.D. in cell biology from the University of Basel in Switzerland. During his doctoral program, Ori studied and published academic papers in the field of neuromuscular disease, specializing in congenital myopathies. Ori completed his postdoctoral training in immunology at Columbia University in New York. During 2019 and 2020, Ori worked as a biomedical writer for the Muscular Dystrophy Association (MDA), creating medical education materials for physicians, patients and families. Ori recently worked at Prescient Healthcare, providing market intelligence and insights for clients in the field of oncology.

Ori is driven to help the neuromuscular community and patients with CMT learn more about their disease and treatment options.

George Simpson

Media Relations Advisor

George launched his own corporate communications firm in 1986. Over than 30 years, he has worked for hundreds of traditional and new media companies including content providers, all manner of online targeting firms from behavioral to semantic to contextual, ad exchanges, mobile ad networks, vertical ad networks, ad serving companies, data providers, advanced TV, attribution companies and others with a play in advertising. Before starting his own business, George worked with NEWSWEEK in marketing and corporate communications from 1972 to 1985 and was Vice President of Corporate Communications with SIMON & SCHUSTER for a year in 1985 and 1986.

George is married to Cleary Simpson and has three children: Will, Anna (who has CMT1A) and TJ. George and Cleary live in Charleston, South Carolina.

Hunter Stahl

Strategic and Philanthropic Advisor

Hunter is a consultant at Deloitte focused on driving innovation in the patient-centric digital health space. She works closely with the CEO of the CMTRF on a number of strategic and philanthropic initiatives, increasing awareness of the foundation’s progress and designing pitches for pivotal collaborations. Her background in biomedical engineering and expertise as a consultant in the pharmaceutical industry brings clear communications, strategic thinking and business development to the Foundation.  

Hunter is driven to help deliver treatments and cures for her brother, Austin, who lives with CMT1A.