Zero K: Race to End CMT
Zero K: Race to End CMT
The Zero K: Race to End CMT is an event for people of all abilities, including those unable to participate in traditional runs. With all the spirit of a 5K and none of the distance, the event raises funds to advance research and treatment for CMT.
Date: Saturday, September 27, 2025
Time: 4:15 p.m. ET
Location: The Royal Sonesta Boston, 40 Edwin H Land Blvd, Cambridge, MA 02142
Stay tuned for the full schedule of events!
Charcot-Marie-Tooth disease is a relentless, progressive and degenerative disease that affects 150,000 people in the United States and nearly three million worldwide.
It is the most common inherited neuropathy, caused by over 140 known genetic mutations — each one disrupting the body’s ability to move, feel and function. While many cases are passed down through families for generations, CMT can also arise spontaneously, changing the course of a life in an instant.
Right now, there are no treatments or cures for CMT, and every day without a breakthrough means more loss of mobility, independence and quality of life.
With your support, the CMT Research Foundation finds and funds the most applicable research with the highest chance of success.
To learn more about CMTRF’s research, visit cmtrf.org/research.
Frequently Asked Questions
What is a Zero K?
The Zero K is a race in spirit — not in distance. No running is required at this fundraising event. Join us for a fun evening with a movie, silent auction, music and food as we raise awareness for CMT and fundraise for a cure.
Can I Bring Guests?
Absolutely! The event is open to friends, families, caregivers and community supporters.
Is the Zero K included if I’ve registered for the Global CMT Research Convention?
Yes! If you’re registered for the 2025 Global CMT Research Convention, your entry to the Zero K is free. You will receive a promo code via email that you can use when signing up for your Zero K ticket.
Sponsors
We are proud to recognize the generous sponsors who make the Zero K: Race to End CMT possible. Their support plays a vital role in advancing research, raising awareness and bringing the CMT community together.
Contact Us
Have questions about the Zero K: Race to End CMT, sponsorship opportunities, or how to get involved? We’d love to hear from you. Reach out to our Event Organizer, Anushka Noori, at [email protected].