CMT News & Updates
See the latest news about CMT drug development and read stories from the CMT community that highlight why we must deliver treatments and cures during our lifetime.
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Global CMT Research Convention: Travel Guide
The 2026 Global CMT Research Convention Dates: September 24 to 26, 2026 Location: Cambridge, Massachusetts Host Hotel: The Royal Sonesta Boston, 40 Edwin H Land Blvd, Cambridge, MA 02142 Whether…
New Paper Highlights CMTRF as a Model for Patient-Driven Research Organizations
A new reflection article published in FEBS Open Bio argues that patients and patient advocates belong at the bench, not just at the bedside. Laura MacNeill, CEO of the CMT…
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What Makes This CMT Research Convention Our Most Hands-On Event Yet
The Global CMT Research Convention has always been a place where patients hear directly from the scientists and companies working on their behalf. This year, on Saturday, September 26…
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Five Reasons to Consider a Planned Gift to CMTRF
Charcot-Marie-Tooth research is moving faster than ever, and planned gifts to the CMT Research Foundation (CMTRF) help make sure that momentum doesn't stop until there are treatments and cures for…
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Project Report: A Negative Result Points to the Way Forward in CMT4B
A recent study found that a drug that helps other nerve diseases makes CMT4B1 worse, and figuring out why has opened a more promising path toward treatment, including a possible path forward…
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The Promise Society: A New Way to Support CMT Research
There are moments when the future you've been fighting for finally comes into view. For the CMT Research Foundation, this is one of those moments. Because of our community, we are closer…
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Deadline Extended: Submit Your Abstract for the 2026 Global CMT Research Convention
We're extending our abstract submission deadline for oral presentations. The original oral presentation abstract deadline for the 2026 Global CMT Research Convention has passed, and we want to give more researchers and clinicians the…
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Apply Now: Emerging Researcher Forum at the 2026 Global CMT Research Convention
The Emerging Researcher Forum is a closed, invite-only session held the morning of Day One of the 2026 Global CMT Research Convention, ahead of the main Convention program that kicks off that afternoon. Eligible forum…
Read More : Apply Now: Emerging Researcher Forum at the 2026 Global CMT Research Convention
The Full Agenda: 2026 Global CMT Research Convention
Charcot-Marie-Tooth disease drug development is at a pivotal moment. More active drug trials are underway than ever before, and a growing community of researchers, companies, investors, and patients is working…
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WEBINAR: Behind the Scenes, 2026 Global CMT Research Convention Preview
https://youtu.be/sjKZ7Przv1M Charcot-Marie-Tooth disease drug development is at a pivotal moment, with more active drug trials underway than ever before and a growing community of researchers, companies, investors, and patients working…
Read More : WEBINAR: Behind the Scenes, 2026 Global CMT Research Convention Preview
