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Press Releases

Five Reasons to Consider a Planned Gift to CMTRF

Five Reasons to Consider a Planned Gift to CMTRF

Aug 17, 2026 | CMTRF Foundation News

Charcot-Marie-Tooth research is moving faster than ever, and planned gifts to the CMT Research Foundation (CMTRF) help make sure that momentum doesn't stop until there are treatments and cures for every person with CMT.  A planned gift is a commitment you make today...

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The Promise Society: A New Way to Support CMT Research

The Promise Society: A New Way to Support CMT Research

Aug 4, 2026 | CMTRF Foundation News

There are moments when the future you've been fighting for finally comes into view. For the CMT Research Foundation, this is one of those moments.  Because of our community, we are closer than ever to changing what it means to live with CMT. The research we're funding...

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Deadline Extended: Submit Your Abstract for the 2026 Global CMT Research Convention

Deadline Extended: Submit Your Abstract for the 2026 Global CMT Research Convention

Jul 28, 2026 | CMTRF Foundation News

We're extending our abstract submission deadline for oral presentations.  The original oral presentation abstract deadline for the 2026 Global CMT Research Convention has passed, and we want to give more researchers and clinicians the chance to share their work. The...

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Apply Now: Emerging Researcher Forum at the 2026 Global CMT Research Convention

Apply Now: Emerging Researcher Forum at the 2026 Global CMT Research Convention

Jul 28, 2026 | CMTRF Foundation News

The Emerging Researcher Forum is a closed, invite-only session held the morning of Day One of the 2026 Global CMT Research Convention, ahead of the main Convention program that kicks off that afternoon. Eligible forum attendees will receive complimentary...

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The Full Agenda: 2026 Global CMT Research Convention

The Full Agenda: 2026 Global CMT Research Convention

Jul 16, 2026 | CMTRF Foundation News

Charcot-Marie-Tooth disease drug development is at a pivotal moment. More active drug trials are underway than ever before, and a growing community of researchers, companies, investors, and patients is working toward treatments. The Global CMT Research...

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WEBINAR: Behind the Scenes, 2026 Global CMT Research Convention Preview

WEBINAR: Behind the Scenes, 2026 Global CMT Research Convention Preview

Jul 16, 2026 | CMTRF Foundation News

Charcot-Marie-Tooth disease drug development is at a pivotal moment, with more active drug trials underway than ever before and a growing community of researchers, companies, investors, and patients working toward treatments. The Global CMT Research Convention exists...

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Why You Should Be in the Room: Dr. Anna Greka to Keynote Global CMT Research Convention

Why You Should Be in the Room: Dr. Anna Greka to Keynote Global CMT Research Convention

Jul 13, 2026 | CMTRF Foundation News

Don't miss Friday's keynote at the Global CMT Research Convention (September 24 to 26, 2026, Cambridge, MA), featuring Dr. Anna Greka, founder of the Ladders to Cures (L2C) Scientific Accelerator at the Broad Institute of MIT and Harvard.  Rare genetic diseases are...

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Submit Your Research: 2026 Global CMT Research Convention Accepting Abstracts

Submit Your Research: 2026 Global CMT Research Convention Accepting Abstracts

Jul 6, 2026 | CMTRF Foundation News

Mark your calendar: the 2026 Global CMT Research Convention will take place September 24 to 26 in Cambridge, Massachusetts, at the Royal Sonesta Boston. The event brings together patients, researchers, pharma companies, investors, and regulatory agencies working to...

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Alan Jackson’s Final Tour Raises $2.25 Million for CMT Research

Alan Jackson’s Final Tour Raises $2.25 Million for CMT Research

Jun 30, 2026 | CMTRF Foundation News

Alan Jackson's "Last Call: One More for the Road" tour has officially wrapped, and the number is in: more than $2.25 million was raised for the CMT Research Foundation through ticket sales, matching contributions, and the wave of awareness Alan brought to...

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One Last Round: Watching Alan Jackson Ride Off Into the Sunset

One Last Round: Watching Alan Jackson Ride Off Into the Sunset

Jun 22, 2026 | CMTRF Foundation News

On June 27, Alan Jackson plays his final concert. After nearly four decades, 35 number one hits, and a catalog that helped define what country music sounds like, he is stepping away from the stage on his own terms.  Several years ago, Alan Jackson opened up about...

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