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Press Releases

CMTRF CEO Welcomed to Prestigious Cohort of Non-profit Research Leaders

CMTRF CEO Welcomed to Prestigious Cohort of Non-profit Research Leaders

Apr 22, 2026 | Foundation News

The CMT Research Foundation’s CEO Laura MacNeil will participate in the 2026–2027 cohort of The FasterCures LeadersLink Program, a program from the Milken Institute.   The program aims to help promising nonprofit research leaders worldwide build high-performing...

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WEBINAR: Gene Therapies Demystified, Understanding the Fundamentals for CMT

WEBINAR: Gene Therapies Demystified, Understanding the Fundamentals for CMT

Apr 16, 2026 | CMT Research Updates, Foundation News

https://www.youtube.com/watch?v=hrNkyIHed8U One of the most rapidly expanding frontiers in Charcot-Marie-Tooth research is also one of the most challenging to keep pace with. Now, the CMT Research Foundation is making it accessible to everyone. The CMTRF launched Gene...

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Alan Jackson Raffle Offers Exclusive Prizes, Benefits CMT Research Foundation

Alan Jackson Raffle Offers Exclusive Prizes, Benefits CMT Research Foundation

Apr 7, 2026 | Foundation News

You can win Alan Jackson’s Corvette or a trip to his sold-out final concert through this raffle, with fundraising proceeds benefitting CMT Research Foundation. Full list of prizes includes: Grand Prize Alan Jackson’s 2013 Chevrolet Corvette Z16 Grand Sport Convertible...

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CMT Takeaways from the MDA Conference

Mar 16, 2026 | Foundation News, Research News

The Muscular Dystrophy Association Clinical & Scientific Conference in mid-March is one of the premier gatherings in the neuromuscular disease world, bringing together researchers, clinicians, industry, and advocates to share the latest science. Our research staff...

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William Skach, MD, Joins CMT Research Foundation Board of Directors

William Skach, MD, Joins CMT Research Foundation Board of Directors

Jan 21, 2026 | Foundation News

The CMT Research Foundation is pleased to announce that William Skach, MD, retired Executive Vice President and Chief Scientific Officer of the Cystic Fibrosis Foundation (CFF), has joined the Foundation’s Board of Directors. Dr. Skach is a clinically trained...

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CMT Research Foundation to Benefit from a Portion of Ticket Sales from Alan Jackson’s Last Call: One More for the Road – The “Finale”

CMT Research Foundation to Benefit from a Portion of Ticket Sales from Alan Jackson’s Last Call: One More for the Road – The “Finale”

Oct 8, 2025 | Foundation News

Alan Jackson is ready to serve up one more round before he retires from touring—and he’s inviting a few friends to join him! Last Call: One More for the Road - The Finale – the last full-length concert of Jackson’s touring career – will take place Saturday, June 27,...

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Dr. Meghan Drummond Joins the CMT Research Foundation as Vice President of Research and Drug Development

Dr. Meghan Drummond Joins the CMT Research Foundation as Vice President of Research and Drug Development

Sep 15, 2025 | Foundation News

Dr. Meghan Drummond, PhD, has joined the CMT Research Foundation as vice president of research and drug development. She will lead the Foundation’s research and drug development strategy, overseeing the advancement of promising therapeutic approaches for...

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Dr. Yulia Grishchuk Joins CMTRF’s Scientific Advisory Board

Dr. Yulia Grishchuk Joins CMTRF’s Scientific Advisory Board

Jul 10, 2025 | Foundation News

CMT Research Foundation is pleased to announce that Dr. Yulia Grishchuk, Ph.D., has joined the Foundation’s Scientific Advisory Board. The SAB is composed of distinguished scientific and clinical experts specializing in Charcot-Marie-Tooth disease and drug...

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Siemens’ Ann Fairchild Joins CMT Research Foundation Board of Directors

Siemens’ Ann Fairchild Joins CMT Research Foundation Board of Directors

Jun 2, 2025 | Foundation News

CMT Research Foundation is pleased to announce that Ann Fairchild, executive vice president and general counsel of Siemens USA, has joined the Foundation’s Board of Directors.  Fairchild is a seasoned legal executive with more than 25 years of experience at Siemens,...

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OHio, What a Night: Lighting a Path to a Cure for Charcot-Marie-Tooth Disease

OHio, What a Night: Lighting a Path to a Cure for Charcot-Marie-Tooth Disease

Apr 15, 2025 | Foundation News

On Thursday, April 10, more than 120 patients, scientists, clinicians and pharma companies gathered in Columbus, Ohio for OHio, What a Night — an unforgettable evening dedicated to accelerating research and developing treatments and cures for Charcot-Marie-Tooth...

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