Feb 17, 2021 | Life with CMT, Stories
By: Monica Thomas, living with CMT2A When I was a kid and would watch movies in which wishes came true, excitement would build in my belly as I imagined my own wish being granted — what if I could rub a lamp and wish CMT away? Thoughts of life without CMT would race...
Feb 17, 2021 | Life with CMT, Stories
By: Shanae Fernandez, living with CMT1X For as long as I can remember, I’ve been different. As a child, running, playing and keeping up with my friends was a challenge. I felt slow and tripped a lot. In high school, I played sports but never felt good enough at...
Feb 17, 2021 | Life with CMT, Stories
By: Jamel, living with CMT I was 16 years old when I first heard about a disease called Charcot-Marie-Tooth (CMT). Growing up, I played basketball and football and lived a very active lifestyle. A broken foot during a game or ongoing football injuries seemed normal —...
Feb 12, 2021 | Life with CMT
By: George Simpson, CMT Research Foundation volunteer With no treatments or cures currently available for people with Charcot-Marie-Tooth disease, caring for someone with CMT may feel daunting. As a dad of a daughter with CMT and a friend to many with the disease, I...
Dec 21, 2020 | Life with CMT, Stories
By: Angelique Street, Living with CMT July 29, 2017. I will never forget that day. My doctor told me it was the worst case of CMT he had ever seen. When he tried to realign my foot, the large bone in my ankle (talus) broke. He was planning to fuse my bones together...
Dec 9, 2020 | Life with CMT, Stories
By: Chelsea Layton, Living with CMT1A When you think of living life in your early 30s, what comes to mind? Pursuing a career you’re passionate about? Traveling the world? Training for a half marathon? Starting a family? At age 31, I want to experience all of...
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