CMT Mothers

CMT Mothers

The CMT Research Foundation knows that moms in the world of CMT have unique challenges and trials. And we salute their tenacity, patience, and unyielding dedication. Here are the stories of two CMT moms; one whose daughter lives with CMT and another who is a patient....
Living with CMT2E

Living with CMT2E

My name is Lily Sander and I have Charcot-Marie-Tooth type 2E. The road to my diagnosis wasn’t easy by any scale. I spent months as a small child in countless specialists’ offices, anxiously waiting for an answer. At this time, I had severe clubfeet and could...

Shayla Hammock, living with CMT1A

I inherited CMT1A through my family, although I was unaware of what was affecting me until I was seven years old.  As a baby, I was unable to lift my head at the same time as my peers and it took me a little longer to learn to walk.  In fact, it seemed like every...

Living with Muscle Weakness is Not Rare to Me

Krista Allison, living with CMT4J I was born with Charcot-Marie-Tooth disease (CMT) and my symptoms started to appear about 12-months-old when I began to learn to walk. Since the age of 15, I have had roughly 12 foot surgeries to correct foot abnormalities, although I...

Changing One Family’s Legacy

As with many families, I am but one leaf in a family tree colored by CMT1A across its many limbs and branches. I have watched successive generations struggle with the disease’s progressively debilitating physical symptoms and persistent emotional toll: grandparents,...