Take Bold Action For This September

Want to win a trip to our 2026 Global CMT Research Convention, connect with a researcher working on your CMT type, or take part in helping to cure Charcot-Marie-Tooth disease?

This September, the CMT Research Foundation is taking action – and we need your help leading the charge.

CMT is the most common inherited neuropathy, affecting millions of lives – and yet, there are still no approved treatments or cures. Families are waiting. Patients are losing mobility. Futures are being put on hold. Every day without treatments is a day too long.

At the CMT Research Foundation, we refuse to wait – we act. Our mission is laser focused: we raise funds to invest in the most promising science to find treatments and cures for all types of CMT. Right now, more than 10 breakthrough projects across multiple CMT subtypes are waiting to be funded.

This is where you come in.

We are challenging our community to take bold action this September by helping to raise critical funds for high-priority research. You can do so by fundraising on behalf of CMTRF and raising $5,000 or by donating any amount you can.

If everyone in our community committed to taking action and raising $5,000 each, we would have enough money to fund every project that comes our way and fast track therapeutics to the clinic.

If you choose to fundraise, getting started is easy! Create a fundraising page through Qgiv or collect checks and note your name in the memo line so we can track your impact. You can also make a direct donation to CMTRF online or by mail.

Those who fundraise or directly donate $5,000 or more will be entered to win a trip to our 2026 Global CMT Research Convention, or a direct connection with a researcher working on your specific type. Those who raise or directly donate $1,000 or more will be entered to win an exclusive CMTRF swag bag.

The real grand prize, of course, is helping to develop treatments and cures for all types of CMT — and we are working to do just that.

This campaign isn’t just about raising funds — it’s about building momentum, growing our community, and bringing new people into the mission — and you have the power to spark that movement. This CMT Action Month, please take action with us. Because the faster we fund this research, the faster we can deliver treatments to the people who need them most.

Let’s move together toward a world without CMT.