Charcot-Marie-Tooth (CMT) was discovered more than 130 years ago, yet the world still has no treatments or cures. Although three million people worldwide are affected, few have heard of this disease.

To mark CMT Action Month this September, the CMT Research Foundation (CMTRF) launched a month-long lineup of events, bringing together artists, advocates, and the CMT community from across the U.S. The series of events strive to raise awareness and critical funds for CMT research. With an estimated 1 in 2,500 individuals affected, the urgency for further research and treatment has never been greater.

All of the projects we are able to fund and the progress we can make in research are a direct result of the CMT community taking massive action: from the two patients who co-founded the organization; to 4,000 individuals who have donated to CMTRF; to patient-researchers dedicating every waking moment of their lives to finding treatments.