A liveley event starting with One-Design Racing J-22’s, followed up with a Shoreside party at Sail Newport. This event will include food, drink, entertainment, as well as raffle and auction opportunities — all in support of raising funds for CMT research!

Date: September 6, 2025
Time: 12:30 pm ET – 8:30 pm ET
Location: Sail Newport: 72 Fort Adams Dr. Newport, Rhode Island 02840
Cost: $50

For more information, or to register, click here.

The CMT Research Foundation unites the voices of patients, researchers, pharma companies, investors and regulatory agencies to develop treatments for CMT.

This event takes place over three days. Thursday and Friday are scientific meetings tailored toward investors, researchers and scientists working to better understand, and ultimately, end CMT. Saturday is primarily for patients and their families, providing a chance to interact with and inform the research community that is working so hard on their behalf. Attendees will have the opportunity to engage with others in the patient community, better understand their disease, and learn how they can participate in the latest research progress.

Date: September 25-27, 2025
Location: The Royal Sonesta Boston: 40 Edwin H Land Blvd Cambridge, MA 02142

For more information, or to register, please visit cmtconvention.cmtrf.org

The Zero K: Race to End CMT is an event for people of all abilities, including those unable to participate in traditional runs. With all the spirit of a 5K and none of the distance, the event raises funds to advance research and treatment for CMT.

Date: Saturday, September 27, 2025
Time: 4:15 p.m. ET
Location: The Royal Sonesta Boston, 40 Edwin H Land Blvd, Cambridge, MA 02142

For more information, or to register, please visit cmtrf.org/bostonzerok