CMT Research Foundation Events

OHio, What a Night

“OHio, What a Night,” hosted by the CMT Research Foundation, is a special event dedicated to showcasing the groundbreaking advancements in Charcot-Marie-Tooth disease research being done in the greater Columbus, Ohio, area.

Attendees will have the unique opportunity to hear from Dr. Jerry Mendell, a leading expert in gene therapy, as he shares insights into the latest innovations and their potential to transform the CMT research space. Join us as we celebrate progress, deepen understanding, and unite in the fight against CMT.

Date: Thursday, April 10, 2025
Time: Reception: 6:00 P.M. — Dinner & Program: 7:00 P.M.
Location: Vitria on the Square: 14 E 15th Ave. Columbus, Ohio
Price: $250 per person — Sponsorship opportunities are available.

For more information, please contact Anna Combes, VP of Philanthrophy, at [email protected].

Co-Chairs: Nanette Nardi and Michael Triplett, Ph.D.

Keynote Speaker: Dr. Jerry Mendell

Jerry R. Mendell, MD, is an advisor to the Jerry R. Mendell Center for Gene Therapy  in the Abigail Wexner Research Institute at Nationwide Children’s and to Sarepta Therapeutics.

Host Committee

W. David Arnold, MD: U Missouri Next Gen Precision Health
Hollie & Scott Harper, Ph.D.: Nationwide Children’s Hospital
Michael C. Isfort MD, Ohio State University, Wexner Medical Center
Kenny Morand, Ph.D.: Neucore Bio & Cincy Tech
Afrooz Rashnonejad, MSc, Ph.D.: Nationwide Children’s Hospital
Zarife Sahenk, MD, Ph.D.: Nationwide Children’s Hospital
Rachel Salzman, DVM: Armatus Bio
Michele & Kent Stahl: Ohio State University & CMT Activists
Lindsay Wallace, Ph.D.: Nationwide Children’s Hospital

Presenting Sponsor

Nanette Nardi and Michael Triplett, Ph.D.

Full Moon Sponsor

Zarife Sahenk, MD, Ph.D.
The Stahl Family

Crescent Moon Sponsor

Twilight Sponsor

Cleary and George Simpson
CK Contruction
Danis
LaBovick Law Group
Mr. and Mrs. Kenneth Morand
Rachel Salzman and Michael Weinberg
Werth

Zero-K Run for CMT

Have you ever wanted to have the full experience of participating in a 5K, 10k or Marathon but just didn’t want to do the running part? This is the race for you!

From race packets, to running bibs, to finisher medals, to 0.0 stickers and more, everyone who signs up to “run” will get the full racer treatment and when the starter horn goes off, everyone will stand up from their lawn chair . . . and then sit back down.

Pre- and post-race will include great live music, comedy, and entertainment for the whole family. It is an afternoon of fun, contests, activities food and drink all outdoors at the amazing Forgotten Star Brewery in Fridley, MN. Think big time fun for a cause!

100% of the money raised from this race will go directly to the CMT Research Foundation.

Date: Saturday, May 17, 2025
Time: 1:00 p.m. – 4:30 p.m. — Zero K ‘Run’ begins at 3:00 p.m.
Location: Forgotten Star Brewing Co. 38 Northern Stacks Dr. Fridley, MN 55421
Price: $35 per “runner” (adults) — $15 per youth “runner” (12 and younger)

For more information, or to register, please visit www.zerokrun.com

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Address

4062 Peachtree Road
Suite A209
Atlanta, GA 30319

Phone Number

404.806.7180

Media Inquiries

George Simpson

203.521.0352

[email protected]

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