This is CMT

CMT affects everyone differently. For some, CMT is an inconvenience; for others, it is fatal. Learn about CMT from patients and the people who care for them.

This is the Erwin Family

Brooke Erwin’s maternal guilt and pain was unbearable when she learned two of her children inherited CMT from her.  Both Evan and Gretchen have gone through multiple, painful surgeries to try and relieve the excruciating and debilitating symptoms of CMT1A.

This is Julianna

Julianna’s CMT progressed so rapidly that it weakened her respiratory muscles. When she was 2 years old, Julianna used a BiPAP machine so she could breathe.  By the time she was 4 years old, Julianna was dependent upon the BiPAP and relied on a wheelchair for mobility. On June 14th, 2016 – just 10 weeks shy of her 6th birthday – Juliana  passed away.

This is Carter

As a baby, Carter missed every major motor milestone: He didn’t crawl until he was 17 months old; and only after four months of physical therapy, he finally took his first steps shortly before his second birthday.  Carter was initially diagnosed with joint hypermobility; after continuing to struggle to jump or step off a curb, the path to a true diagnosis became more serious.

This is Devin

Devin has CMT4J – one of the most rare types of Charcot-Marie-Tooth; only about two dozen cases of CMT4J are known worldwide.  Like ALS, CMT4J can completely devastate the body.  .


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