The CMT Research Foundation’s


September 24 & 25
Alexandria, Virginia, USA

Join us for a global CMT research convention, bringing together the research community and patients in a single event.

The CMT Research Foundation is laser-focused on delivering treatments and cures for Charcot-Marie-Tooth disease during our lifetime.

The 2021 Global CMT Research Convention unites researchers, pharma companies, government and patients to solve the most pressing problems in CMT drug development.

Come learn what the future holds for CMT and how you can help end the disease!


September 24 & 25

Minutes away from Washington D.C., at the Embassy Suites in historic Alexandria, Virginia
As a global event, you can attend virtually from anywhere.

September 24

For the Research Community

For researchers, industry and government agencies to:

  • SHARE the latest in CMT drug development research
  • UNITE their voices and streamline their work
  • SOLVE the most pressing issues facing CMT drug development


September 25

For Patients

A day for the patient community to:

  • LEARN about recent developments and clinical trials in CMT
  • INTERACT with key research experts
  • ACT to advance treatments for CMT


MDA logo

Thank you to the Muscular Dystrophy Association for their partnership in our first Global CMT Research Convention.

Interested in learning more?

The Scientific Programming Committee

Marina Kennerson, PhD – Chair

Professor of Neurogenetics and Neuroscience

ANZAC Research Institute and University of Sydney, Australia


Carla Taveggia, PhD – Vice Chair

Director, Division of Neuroscience

Ospedale San Raffaele, Milan, Italy


Charles Abrams, MD, PhD

Professor of Neurology and Rehabilitation

University of Illinois, Chicago (UIC)

Paul August, PhD

Vice President of Biology

Agios Pharmaceuticals


Robert Burgess, PhD

Professor, The Rare and Orphan Disease Center

The Jackson Laboratory


Amanda Haidet-Phillips, PhD

Senior Director, Translational Medicine

Novartis Gene Therapies

Glen Nuckolls, PhD

Program Director, Neurogenetics, Division of Neuroscience

U.S. National Institute of Neurological Disorders and Stroke (NINDS)


Jonathan Sabbagh, PhD

Scientific Portfolio Director

Muscular Dystrophy Association


Tiina Urv, PhD

Program Director, Office of Rare Diseases Research

U.S. National Center for Advancing Translational Sciences (NCATS)

Join us for this first opportunity to
unite the CMT community to end CMT!