From Awareness to Action: Let’s Change the Future of CMT

From Awareness to Action

Charcot-Marie-Tooth disease was discovered more than 130 years ago, yet the world still has no treatments or cures. Although three million people worldwide are affected, few have heard of CMT.

September is CMT Awareness Month, a time to educate the world about CMT. But awareness isn’t enough to stop CMT. To end this insidious disease during our lifetime and for every future generation, we must turn awareness into action.

Take Action Now to Double CMT Research

Make sure CMT research doesn’t stall due to COVID-19.

Now through September 30, a generous group of donors will match your donation  — dollar for dollar — up to $30,000. This means your action will have double the impact for individuals and families who can’t afford to wait for treatments any longer.


Quotation Marks

Living with CMT is living in fear of your future. It’s hard watching your body decline knowing that nothing can fix it. — CMT patient

More Ways to Turn Awareness into Action

Chats with CMT Research Experts


This new video series asks and answers the often-avoided questions about CMT. Watch and learn how to advocate for answers.

Start your CMT fundraiser


Create a personal fundraising page today to accelerate CMT answers today, your way.

Participate in the CMT drug development process


Discover five things you can do now to speed the therapy development process for patients.


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