CMT Research Foundation's Research Priorities

Understanding the biggest barriers in developing treatments for CMT and attacking them

Social Media Toolkit

In honor of Rare Disease Day (February 28), use your voice to raise awareness and inspire action to end Charcot-Marie-Tooth for the millions of kids and adults whose CMT is not rare to them.


#RareNotRare: Tag & Share

Getting loud on social media in honor of Rare Disease Day is easy as 1, 2, 3.

1. Share your “Rare Not Rare” CMT story on your favorite platform

2. Use the hashtags #RareNotRare #RareDiseaseDay #ShowYourStripes #RefusetheInvisibility and #SeeRare in each message on your social media channels to connect with the Rare Disease community

3. Tag the CMT Research Foundation in your posts so we can amplify your messages as well:    

Ready to take the next step?

CMT may be classified as a rare disease, but the physical and mental toll it takes on people’s lives is 24/7/365. In honor of Rare Disease Day, show your support for kids and adults with CMT whose “rare” disease is anything but rare to them by making a donation or starting a fundraiser to fund the most promising research that could lead to the next big breakthrough for CMT patients and families.


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Phone Number


Media Inquiries

George Simpson


[email protected]