CMT Research Foundation's Research Priorities

Understanding the biggest barriers in developing treatments for CMT and attacking them

Your Social Media Toolkit

In honor of Rare Disease Day (February 28), use your voice to raise awareness and inspire action to end Charcot-Marie-Tooth for the millions of kids and adults whose CMT is not rare to them. We’ve created social media graphics and sample posts to make getting loud on social easy.


#RareNotRare: Tag & Share

Getting loud on social media in honor of Rare Disease Day is easy as 1, 2, 3.

1. Open our Rare Disease Day social media toolkit.

2. Use the graphics and sample posts to customize your messages and add your own photos.

3. Tag #RareNotRare and #RareDiseaseDay in each message on your social media channels. Don’t forget to tag the CMT Research Foundation in your posts so we can amplify your messages as well:

Rare Disease Day Facebook profile frame


Add our Rare Disease Day Facebook frame to your profile photo.

Rare Disease Day Facebook Timeline Cover


Add one of our Facebook timeline covers to your profile.

Rare Disease Day Instagram Story frames


Use our Instagram Story frames to share why CMT is not rare to you.

Ready to take the next step?

CMT may be classified as a rare disease, but the physical and mental toll it takes on people’s lives is 24/7/365. In honor of Rare Disease Day, show your support for kids and adults with CMT whose “rare” disease is anything but rare to them by making a donation or starting a fundraiser to fund the most promising research that could lead to the next big breakthrough for CMT patients and families.


4062 Peachtree Road
Suite A209
Atlanta, GA 30319

Phone Number


Media Inquiries

George Simpson


[email protected]