Living in pain every day is not rare to me.
Shanae, living with CMT1X
Worrying about my daughter’s future is not rare to me.
Jamel, living with CMT
Losing my independence is not rare to me.
Show You Care About Rare: Take Action Now
CMT may be classified as a rare disease, but the physical and mental toll it takes on people’s lives is 24/7/365. In honor of Rare Disease Day, show your support for kids and adults with CMT whose “rare” disease is anything but rare to them. Commit to taking one simple action to help the CMT Research Foundation speed treatments and cures for CMT. Your support will help fund promising research that could lead to the next big breakthrough for CMT patients and families.
#RareNotRare: CMT is Not Rare to Us
UNMASKING A RARE DISEASE
After years of being told her pain was in her head, Shanae found answers and a way to fight back. Read her story.
FROM THE SHADOWS TO THE STAGE
Early in his journey, doctors told Jamel he couldn’t have CMT because he was Black. Today he fights back for his daughter. Read his story.