Share Your Story 

One of the consistent comments from scientists and researchers studying CMT is how important it is for them to hear directly from patients. While your CMT physician might hear your personal story and history, those in the labs seeking treatments and a cure rarely get that opportunity – and they say it is vital to their work.

Sharing your story gives you the opportunity to not only share your side of living with CMT, but it can establish common ground and empathy with those worldwide with CMT. When we share our stories, it can empower the community and help those with this rare disease feel not as alone.