Walking Manhattan to Find a Cure

Walking Manhattan to Find a Cure

From a young age, Rivka knew that there was something different about her compared to her 3 siblings. That difference was Charcot-Marie-Tooth disease.    Meet Rivka, a young adult living with CMT1B in New York/Manhatten who is preparing to participate in this year's...

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The Importance of Fundraising

The Importance of Fundraising

By: Miron Hall Because CMT is a rare disease, it often receives less attention and funding than more common medical conditions. Without adequate resources, researchers struggle to develop effective treatments and ultimately find a cure. This is where fundraising plays...

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A Rare Disease Throughout Time

More than 3 million people around the world have Charcot-Marie-Tooth (CMT) disease, but even with its quirky name, CMT is still relatively unknown. A progressive, degenerative disease involving the peripheral nerves that branch out from the brain and spinal cord to...

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