Take Action
When patients see the magnitude of what we and other CMT organizations do to try to end CMT, they might feel as if whatever they do would not be nearly as impactful. On the contrary, we know that there are many parts to complete the equation to curing CMT and we want you to be one of them. Here are some ways that make it easier than ever to become involved – and help the CMTRF help you.
Give
Donate
Donate Now
Your donation to the CMT Research Foundation today will support the most promising research
Planned Giving
Planned Giving
There are many ways to give to help CMT.
Tribute Gift
Tribute Gift
Donate in honor or memory of a loved one
Double The Donation
Double The Donation
Double your donation with an employer match
Fundraise
Fundraise
Curious about becoming involved and doing more to help end CMT?
Attend
Global CMT Research Convention
Global CMT Research Convention
The CMT Research Foundation unites the voices of patients, researchers, pharma companies and regulatory agencies to develop treatments for CMT.
Volunteer
Ambassadors
CMTRF Ambassadors
The CMTRF Ambassadors are a dedicated team of volunteers committed to supporting the work that the CMTRF is doing towards finding treatments and cures for CMT.
More Ways to Get Involved
Share Your Story
Share Your Story
When we share our stories, it can empower the community and help those with this rare disease feel not as alone.
Follow Us
Follow Us
Want to follow along with the CMTRF’s work in a way other than by email or our website?
Stay Informed
Stay Informed
We fund innovative research that has the potential to be quickly translated into treatments.
Jamal Hill
UNSTOPPABLE
UNSTOPPABLE
The CMT Research Foundation partnered with Jamal Hill, a CMT patient and U.S. Paralympian. Their joint mission is to increase public awareness of the impact CMT has on patients and the need to fund research for a cure.
Jenny Decker
Just a Lap
Just a Lap
Jenny Decker is attempting to make it into the Guinness Book of World Records as the first person to sail around the world solo with CMT. She expects the journey to take 3 years and will visit almost 30 countries along the way.
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Phone Number
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