Living with Muscle Weakness is Not Rare to Me

Feb 18, 2022 | Life with CMT

Krista Allison, living with CMT4J

I was born with Charcot-Marie-Tooth disease (CMT) and my symptoms started to appear about 12-months-old when I began to learn to walk. Since the age of 15, I have had roughly 12 foot surgeries to correct foot abnormalities, although I still walked with a limp and had to limit my activities. At the age of 22, I became pregnant and my symptoms were exacerbated to the point of requiring a wheelchair. I have been in a wheelchair ever since that pregnancy, but I would not give my daughter up for the world! At the age of 27, I married my daughter’s father and we have been together for 19 years—he is my rock and my love of a lifetime; I do not know what I would do without him.

Persevering Despite the Challenges

After having my daughter and regaining some of the strength I had lost, I worked to obtain my Bachelors Degree in Criminal Justice and Masters Degree in Management and Public Administration. I was determined to show my daughter that despite the challenges one might face, if you work hard you can accomplish anything. I began a career path in law enforcement in 2011 and I am now a federal government employee.

I am involved within my community, including being a part of our Police Citizens Academy. I spend most of my time with my family, participating in activities, and going to events put on by my city. I love hanging out with friends and being on ‘the go’. I also enjoy listening to music, singing, and painting.

Hopeful for the Future

I may have challenges that limit myself, and my daily struggles with CMT certainly are not “rare” to me, but I am determined not to let those challenges stop me in any way. I am proud to be an ambassador for the CMT community and I look forward to great things to come.

 

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