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OHio, What a Night: Lighting a Path to a Cure for Charcot-Marie-Tooth Disease

OHio, What a Night: Lighting a Path to a Cure for Charcot-Marie-Tooth Disease

Apr 15, 2025 | Foundation News

On Thursday, April 10, more than 120 patients, scientists, clinicians and pharma companies gathered in Columbus, Ohio for OHio, What a Night — an unforgettable evening dedicated to accelerating research and developing treatments and cures for Charcot-Marie-Tooth...
82VS Progressing Ahead of Schedule in CMTRF-Funded Project to Improve Oligonucleotide Drug Delivery for CMT

82VS Progressing Ahead of Schedule in CMTRF-Funded Project to Improve Oligonucleotide Drug Delivery for CMT

Apr 9, 2025 | CMT Research Updates, CMTRF Funded Research

Since launching their collaboration with CMT Research Foundation in November 2024, researchers at 82VS, the venture studio of Alloy Therapeutics, have made rapid progress and are ahead of schedule testing their novel technology focused on improving RNA therapeutic...
Initial CMTRF Funding Leads Augustine Therapeutics to Raise $85 Million for CMT Clinical Trials

Initial CMTRF Funding Leads Augustine Therapeutics to Raise $85 Million for CMT Clinical Trials

Mar 27, 2025 | CMT Research Updates, CMTRF Funded Research, Research News

CMT Research Foundation funded partner Augustine Therapeutics recently announced that they completed their Series A financing round and raised $85 million, which will be used to advance their Charcot-Marie-Tooth disease drug candidate, AGT-100216, through a Phase I/II...
More Than Just a Rare Disease: Jodi Balog’s Journey With CMT

More Than Just a Rare Disease: Jodi Balog’s Journey With CMT

Feb 27, 2025 | Life with CMT

Jodi Balog, Pennsylvania, Living With CMT Jodi Balog has lived with Charcot-Marie-Tooth disease for more than 30 years. Diagnosed at the age of 13, CMT has become all she’s ever known. While CMT is classified as a rare disease, for Jodi — and millions of others — it’s...
Dr. Afrooz Rashnonejad Joins CMTRF’s Scientific Advisory Board

Dr. Afrooz Rashnonejad Joins CMTRF’s Scientific Advisory Board

Jan 23, 2025 | Foundation News

CMT Research Foundation is pleased to announce that Dr. Afrooz Rashnonejad has joined the Foundation’s Scientific Advisory Board. The SAB is composed of distinguished scientific and clinical experts specializing in Charcot-Marie-Tooth disease and drug development. The...
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