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Responding to the Pandemic with Persistence and Progress

May 1, 2020 | CMT Research Updates

By: Susan Ruediger, CEO, CMT Research Foundation Our lives have changed so much in just eight short weeks. As I’ve spoken with members of our CMT community, the fear and uncertainty we feel as people who are considered “vulnerable” are palatable. “It takes me twice as...
New Research Project to Advance Treatments for CMT1B

New Research Project to Advance Treatments for CMT1B

Apr 29, 2020 | CMT Research Updates, CMTRF Funded Research, Drug Development, Research News

The CMT Research Foundation is pleased to announce a new partnership with The Jackson Laboratory that will help us better understand CMT1B and potentially lead to the discovery of treatments. CMT1B is the third most common form of CMT. It’s caused by a defect in the...

Discovery of a new gene found to cause CMT2

Mar 25, 2020 | CMT Research Updates, Research News

Two CMT Research Foundation Scientific Advisory Board members make a new discovery Congratulations to our Scientific Advisory Board members Drs. Charlotte Sumner and William Motley on their recent publication identifying a new gene implicated in CMT2.    Genetic...

Acceleron discontinues development of ACE-083 for use in CMT

Mar 23, 2020 | CMT Research Updates, Research News

  Acceleron recently announced that treatment with ACE-083 in patients with CMT did not demonstrate functional improvement in the Phase 2 trial.  ACE-083 is a drug which is injected locally into a muscle in order to stimulate growth of the injected muscle....

Gene Therapy for Axonal Neuropathies

Mar 9, 2020 | CMT Research Updates, CMTRF Funded Research, Drug Development

Gene Therapy for Axonal Neuropathies By Grace Pavlath, PhD I’ve written recently about gene therapy approaches in development for CMT1A, a form of CMT that affects the myelin sheath of nerves.  There is also robust research to develop gene therapies for axonal forms...
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