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CMT Patients & Families Need More Than Awareness

Aug 25, 2020 | Foundation News, Life with CMT

By: Susan Ruediger, CEO, CMT Research Foundation As the fifth generation in my family to have CMT, the words Charcot-Marie-Tooth disease are as familiar to me as my own name. The harsh realities of its impact on my body are always with me, becoming increasingly...

5 Ways CMT Patients Can Take Action to Accelerate Drug Development

Aug 24, 2020 | CMT Research Updates, Research News

“Patients are one of the most disruptive technologies in advancing drug development.” That’s what Dr. Chris Austin, the director of the National Center for Advancing Translations Sciences at the National Institutes of Health has said. And he knows. He’s been working...

CMT Research Foundation Adds New Chief Operating Officer and Chief Scientific Officer

Aug 17, 2020 | Foundation News

The CMT Research Foundation Adds Erich Fasnacht as Chief Operating Officer and Keith Fargo as Chief Scientific Officer Reinforces CMTRF’s Reputation as Preeminent Experts in CMT Research ATLANTA (August 17, 2020) The CMT Research Foundation (CMTRF), a nonprofit...

How Breakthroughs in Other Diseases Can Impact CMT

Jul 30, 2020 | CMT Research Updates, CMTRF Funded Research, Research News

While CMT has many similarities to other neuromuscular diseases like ALS, multiple sclerosis (MS) and spinal muscular atrophy (SMA), there is one stark difference that can’t be ignored: ALS, MS and SMA all have treatments approved and available for patients; CMT does...

Meet the CMT Research Foundation’s New Chief Operating Officer Erich Fasnacht

Jul 30, 2020 | Foundation News

The CMT Research Foundation is pleased to announce that Erich Fasnacht has joined our team as chief operating officer. He will be responsible for many of the day-to-day operations of the organization, including financial oversight and fundraising. With deep experience...
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