Hope Alone Won’t Save My Hands, But a Treatment Will

Hope Alone Won’t Save My Hands, But a Treatment Will

By: Joe Hogan, Living with CMT1A I heard a loud pop. Then came the sudden swelling. All I’d been doing was walking down the sidewalk when my left leg snapped. At first, I thought it was just sprained. I kept limping on it for two weeks until a doctor confirmed it was...
Thank You for Giving Me More Than Hope

Thank You for Giving Me More Than Hope

By: Susan Ruediger, CEO, CMT Research Foundation “I am very confident that this decade we will have at least one treatment approved, if not more, for Charcot-Marie-Tooth disease.” I nearly fell out of my chair when Dr. Sindhu Ramchandren said those words (and not just...