Living in Pain Every Day is Not Rare to Me

Living in Pain Every Day is Not Rare to Me

By: Shanae Fernandez, living with CMT1X For as long as I can remember, I’ve been different. As a child, running, playing and keeping up with my friends was a challenge. I felt slow and tripped a lot. In high school, I played sports but never felt good enough at...
Worrying About My Daughter’s Future is Not Rare to Me

Worrying About My Daughter’s Future is Not Rare to Me

By: Jamel, living with CMT I was 16 years old when I first heard about a disease called Charcot-Marie-Tooth. Growing up, I played basketball and football and lived a very active lifestyle. A broken foot during a game or ongoing football injuries seemed normal — I’ll...
Caring for Someone with CMT: 3 Tips for CMT Caregivers

Caring for Someone with CMT: 3 Tips for CMT Caregivers

By: George Simpson, CMT Research Foundation volunteer With no treatments or cures currently available for people with Charcot-Marie-Tooth disease, caring for someone with CMT may feel daunting. As a dad of a daughter with CMT and a friend to many with the disease, I...