CMT News & Updates
See the latest news about CMT drug development and read stories from the CMT community that highlight why we must deliver treatments and cures during our lifetime.
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Changing One Family’s Legacy
As with many families, I am but one leaf in a family tree colored by CMT1A across its many limbs and branches. I have watched successive generations struggle with the…
Be the Change We Wish to See: Join the Spring CMT Research Challenge
Tired of living with a disease that has no treatments and cures, Chelsea Layton and her fellow CMT Research Foundation volunteer ambassadors created the Spring CMT Research Challenge to rally…
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7 Ideas for Personal Fundraising Success
CMT patient Chelsea Layton shares her tips and ideas for starting a personal fundraiser.
Living in Pain Every Day is Not Rare to Me
The day after my 29th birthday, I received confirmation that the intense pain I'd been experiencing all my life was most certainly not in my head. It was Charcot-Marie-Tooth 1X.…
Worrying About My Daughter’s Future is Not Rare to Me
CMT may be a rare disease, but it is anything but rare to me. The most challenging part of living with CMT is the emotional toll it takes. I often…
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Caring for Someone with CMT: 3 Tips for CMT Caregivers
With no treatments or cures currently available for people with Charcot-Marie-Tooth disease, caring for someone with CMT may feel daunting. As a dad of a daughter with CMT and a…
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Mom with CMT Loses Her Leg but Gains Strength for Her Daughter
My doctor told me it was the worst case of CMT he had ever seen. We reviewed my options: A fusion with no end to my pain, or amputation. Here's…
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After 10 Surgeries in 10 Years to Address Deformities from CMT, This Young Woman is Fighting Back
Surgical recovery takes up to 12 weeks and requires me to take a leave of absence from my job, lay with my toes above my nose, spend most of the…
Hope Alone Won’t Save My Hands, But a Treatment Will
I heard a loud pop. Then came the sudden swelling. All I’d been doing was walking down the sidewalk when my left leg snapped. At first, I thought it was…
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One Million Steps to the Holidays for CMT
As I approach my one-year anniversary as the community manager for the CMT Research Foundation, I’ve thought a lot about how I should mark this occasion. I decided the best…
