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Lighting the Future: A Mother’s Fight for a Cure

Lighting the Future: A Mother’s Fight for a Cure

Nov 17, 2025 | Life with CMT Stories

The Greatest Gift: Kaileen Nelson, Canada, Living with CMT2D Every December, Kaileen looks for light. Not just the glittering bulbs strung across her Canadian neighborhood — but the kind of light that reminds her that hope still exists. Because for Kaileen, simple...
CMT Research Foundation to Benefit from a Portion of Ticket Sales from Alan Jackson’s Last Call: One More for the Road – The “Finale”

CMT Research Foundation to Benefit from a Portion of Ticket Sales from Alan Jackson’s Last Call: One More for the Road – The “Finale”

Oct 8, 2025 | CMTRF Foundation News

Alan Jackson is ready to serve up one more round before he retires from touring—and he’s inviting a few friends to join him! Last Call: One More for the Road – The Finale – the last full-length concert of Jackson’s touring career – will take place Saturday, June...
CMT Research Foundation Funds Elpida Therapeutics to Launch Manufacturing of a Gene Therapy Drug for CMT4J

CMT Research Foundation Funds Elpida Therapeutics to Launch Manufacturing of a Gene Therapy Drug for CMT4J

Sep 26, 2025 | CMTRF Funded Research

CMT Research Foundation announced they have funded Elpida Therapeutics to launch manufacturing of a gene therapy drug for Charcot-Marie-Tooth disease type 4J. The announcement came at the 2025 Global CMT Research Convention. “Our ELP-02 gene therapy is trial-ready,”...
Dr. Meghan Drummond Joins the CMT Research Foundation as Vice President of Research and Drug Development

Dr. Meghan Drummond Joins the CMT Research Foundation as Vice President of Research and Drug Development

Sep 15, 2025 | CMTRF Foundation News

Dr. Meghan Drummond, PhD, has joined the CMT Research Foundation as vice president of research and drug development. She will lead the Foundation’s research and drug development strategy, overseeing the advancement of promising therapeutic approaches for...
CMT Research Foundation Invests in the Next Generation of CMT Researchers

CMT Research Foundation Invests in the Next Generation of CMT Researchers

Sep 10, 2025 | CMTRF Funded Research

The CMT Research Foundation has awarded funding to four new research projects through its Emerging Researcher Award program, which provides small, high-impact grants to promising scientists in academia and industry. Spanning multiple Charcot-Marie-Tooth disease...
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