By: Chelsea Layton, living with CMT1A If you want to make a difference in Charcot-Marie-Tooth disease research but fundraising feels overwhelming to you, have no fear! Getting started in fundraising is easier than you think. Fundraising isn’t about holding elaborate...
By: Monica Thomas, living with CMT2A When I was a kid and would watch movies in which wishes came true, excitement would build in my belly as I imagined my own wish being granted — what if I could rub a lamp and wish CMT away? Thoughts of life without CMT would race...
By: Shanae Fernandez, living with CMT1X For as long as I can remember, I’ve been different. As a child, running, playing and keeping up with my friends was a challenge. I felt slow and tripped a lot. In high school, I played sports but never felt good enough at...
By: Jamel, living with CMT I was 16 years old when I first heard about a disease called Charcot-Marie-Tooth (CMT). Growing up, I played basketball and football and lived a very active lifestyle. A broken foot during a game or ongoing football injuries seemed normal —...
By: George Simpson, CMT Research Foundation volunteer With no treatments or cures currently available for people with Charcot-Marie-Tooth disease, caring for someone with CMT may feel daunting. As a dad of a daughter with CMT and a friend to many with the disease, I...
By: Angelique Street, Living with CMT July 29, 2017. I will never forget that day. My doctor told me it was the worst case of CMT he had ever seen. When he tried to realign my foot, the large bone in my ankle (talus) broke. He was planning to fuse my bones together...
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