CMT News & Updates
See the latest news about CMT drug development and read stories from the CMT community that highlight why we must deliver treatments and cures during our lifetime.
Five Reasons to Consider a Planned Gift to CMTRF
Charcot-Marie-Tooth research is moving faster than ever, and planned gifts to the CMT Research Foundation (CMTRF) help make sure that momentum doesn't stop until there are treatments and cures for every person with CMT. A planned gift is a commitment you make today...
CMT Orgs Come together to Advocate for New Clinical Trial Framework
Organizations focused on Charcot-Marie-Tooth (CMT) disease have aligned with clinicians, and pharmaceutical companies to share a set of recommendations for how CMT clinical trials should be designed, with the recommendations published in Journal of the Peripheral...
The Promise Society: A New Way to Support CMT Research
There are moments when the future you've been fighting for finally comes into view. For the CMT Research Foundation, this is one of those moments. Because of our community, we are closer than ever to changing what it means to live with CMT. The research we're funding...
Deadline Extended: Submit Your Abstract for the 2026 Global CMT Research Convention
We're extending our abstract submission deadline for oral presentations. The original oral presentation abstract deadline for the 2026 Global CMT Research Convention has passed, and we want to give more researchers and clinicians the chance to share their work. The...
Apply Now: Emerging Researcher Forum at the 2026 Global CMT Research Convention
The Emerging Researcher Forum is a closed, invite-only session held the morning of Day One of the 2026 Global CMT Research Convention, ahead of the main Convention program that kicks off that afternoon. Eligible forum attendees will receive complimentary...
The Full Agenda: 2026 Global CMT Research Convention
Charcot-Marie-Tooth disease drug development is at a pivotal moment. More active drug trials are underway than ever before, and a growing community of researchers, companies, investors, and patients is working toward treatments. The Global CMT Research...
WEBINAR: Behind the Scenes, 2026 Global CMT Research Convention Preview
Charcot-Marie-Tooth disease drug development is at a pivotal moment, with more active drug trials underway than ever before and a growing community of researchers, companies, investors, and patients working toward treatments. The Global CMT Research Convention exists...
Introducing the CMTRF Journal Club: A New Interactive Series for CMT Researchers
The CMT Research Foundation is launching a new Journal Club webinar series designed specifically for researchers working in the CMT space. Each session will spotlight a recent, high-impact publication, with a short presentation from the research team followed by open...
Why You Should Be in the Room: Dr. Anna Greka to Keynote Global CMT Research Convention
Don't miss Friday's keynote at the Global CMT Research Convention (September 24 to 26, 2026, Cambridge, MA), featuring Dr. Anna Greka, founder of the Ladders to Cures (L2C) Scientific Accelerator at the Broad Institute of MIT and Harvard. Rare genetic diseases are...
Submit Your Research: 2026 Global CMT Research Convention Accepting Abstracts
Mark your calendar: the 2026 Global CMT Research Convention will take place September 24 to 26 in Cambridge, Massachusetts, at the Royal Sonesta Boston. The event brings together patients, researchers, pharma companies, investors, and regulatory agencies working to...
